Alexander’s Journey
May 7, 2010 Alexander was born. You can read about his birth story HERE. We came home optimistic, even though he has a very large deletion. 15.32. Alexander underwent surgery 4 times in the first 7 months of life. He had 2 surgeries on his eyes (he had a cateract removed and we are currently… [Continue Reading]
About Wolf Hirschhorn
Wolf-Hirschhorn Syndrome Definition Wolf-Hirschhorn syndrome (WHS) refers to a condition that is caused by a missing part (deletion) of the short arm of chromosome 4. This missing genetic material results in severe developmental retardation, a characteristic facial appearance, and may include a variety of other birth defects. Description This syndrome was reported in 1965 in published reports… [Continue Reading]
Start Here if You Are New
So you want to know about us? Normal girl meets Normal guy. BAM. Fireworks and love. Normal marriage. Normal little house. BAM. Twins. (even as I say this – it makes my heart smile.) One more Normal baby. BAM. Alexander. Not a Normal baby – a Miracle of Life. I love our life. Our not… [Continue Reading]
Latest Posts
When Online wasn’t cool
Now, everyone is online. (Everyone but Ray… an whole other post). My husband’s grandpa is on Facebook. People use twitter, Facebook, find blogs… connect. I have these great bloggy “friends” that I share my heart and soul with every few days. But, if they walked past me on the street – I might not recognize… [Continue Reading]

It’s So Hard to Explain: The Talk
I’m writing this for everyone who helped us to get here. Everyone who has supported us, everyone who has loved us, everyone who has prayed for us… and everyone who gave us even a dollar toward this trip. (And sometimes a hug is worth a thousand dollars..) We were told we could lie, but I’m… [Continue Reading]

Dear Andrew and Addison, I’m so Sorry…
Please know that I cried. I cried before I told you and after. It broke my heart to break yours. I’m so sorry. I’m just trying to do the best that I can. If you only ever read one post from this blog, right now – I would beg it to be this one. Since… [Continue Reading]

It’s All Relative
Things I’ve learned since getting Mixie: Apparently my inability to parent transcends species. We will not be having anymore children anytime soon… we just had one. I can now blame my lack of matching socks on Mixie, who loves them. I LOVE 4 Paws for Ability – they are so patient with us. (And we… [Continue Reading]

Guest Post: I’m Living Proof that God has a Sense of Humor
As most of you know – we are in training for our service dog. After our debacle with our “housing incident” – things only went down hill from there. The final straw was when the shower (or toilet… I like to believe it was shower) began leaking into the living room. We packed up our… [Continue Reading]




I am a teacher by day, but mother 24/7. I have 3 children. The twins, Andrew and Addison, turned 3 years old in October. I also have a 1 year old baby who was born with a very rare chromosomal disorder - Wolf Hirschhorn Syndrome.




