A Little Something for Me

Alexander’s Journey

May 7, 2010 Alexander was born. You can read about his birth story HERE. We came home optimistic, even though he has a very large deletion. 15.32. Alexander underwent surgery 4 times in the first 7 months of life. He had 2 surgeries on his eyes (he had a cateract removed and we are currently… [Continue Reading]

About Wolf Hirschhorn

Wolf-Hirschhorn Syndrome Definition Wolf-Hirschhorn syndrome (WHS) refers to a condition that is caused by a missing part (deletion) of the short arm of chromosome 4. This missing genetic material results in severe developmental retardation, a characteristic facial appearance, and may include a variety of other birth defects. Description This syndrome was reported in 1965 in published reports… [Continue Reading]

Start Here if You Are New

So you want to know about us? Normal girl meets Normal guy. BAM. Fireworks and love. Normal marriage. Normal little house. BAM. Twins. (even as I say this – it makes my heart smile.) One more Normal baby. BAM. Alexander. Not a Normal baby – a Miracle of Life. I love our life. Our not… [Continue Reading]

Latest Posts

Sometimes I talk about Motherhood. Sometimes I talk about Special Needs. Sometimes I talk about Social Issues. Sometimes it is funny and sometimes it is sad. Always, I try to be true to myself.

The answer to the Million Dollar Question….

I need new sheets. My current sheets are luxurious 600 thread count and make you feel like you are sleeping on air. They also have a hole worn where my feet rest at night. (Maybe I have RLS?) Right now? We can afford hand-me-down sheets from the goodwill bargain bin. Maybe 20 thread count… My… [Continue Reading]

Looking through a Foggy Lens

I’ve had these weird conversations with people lately. You know the ones… Where they ask me how I am doing, and I say, “fine,” and then – it turns just a little uncomfortable. They lean in and say, “Really, Kristen. How ARE you doing?” Truth is, things around here have been ok. Like… life… [Continue Reading]

Ride that Horse–Again….

Sometimes, the days are long. Sometimes… it seems things just get knocked around. Last week, I went to get tested for mono, had the worst photo shoot ever, busted my face, nursed a house full of sick people, and realized we were broke again. haha (that is not a realization, it is… [Continue Reading]

Mixie

I’m going to write… because writing feels good. I don’t worry as much. (this better not be like cleaning off my desk). Instead, I want it to be a reminder, of a thank you. To everyone. That I haven’t forgotten. That we haven’t stopped being grateful for that big lug that is sitting on my… [Continue Reading]

I’m New Here….

I’ve been working my rear end off. I’m taking pictures. I’m gearing up for Christmas. I’m editing photos. I’m getting better. I’m working harder than I ever have. I want this. I’m good at this. I want to welcome my photography friends to my blog. Feel free to poke around and read a bit. Sometimes… [Continue Reading]