Dear Alexander,
Tonight I kissed you and wished you Happy “Almost Birthday.” Tomorrow you will wake up and be a different part of a statistic. Tomorrow you will join the 66 percent of children with Wolf Hirschhorn Syndrome who thrive beyond age 2.
I wonder if other mothers think like this? I wonder if I am the only one? Who has been holding my breath to pass this milestone?
I’m not in denial. I know that “turning 2” won’t suddenly stop the seizures, or doctor visits, or mean you are never sick. I know that a day doesn’t mean the end of our medically fragile world.
I also remember those first days in the hospital. I wonder if I will ever forget those cruel words from the doctors? They still cut so deep – they literally make me catch my breath and clutch my heart. I wonder how many times those words have fuelled us to push on to this point?
You are my fighter baby. So many times… you have fought like no one I’ve ever known. You make me proud to be your Mommy. And it was with pride that we celebrated the birthday you were never supposed to have – with our friends and family.
We forgot the tears of the past two years. We forgot the fears. The frustrations. The medicines. The everything. Instead…we had cake and ice cream and hamburgers and hotdogs and laughs. And we loved you. It wasn’t a “small wedding” like your first birthday. Grandparents, Uncles and Aunts, cousins, and a few friends. To fill our home with love.
![IMG_0306[1]](http://www.alittlesomethingforme.com/wp-content/uploads/2012/05/IMG_03061.jpg "IMG_0306[1]")
Sweet Baby. My heart over flows with love for you. Every. Single. Day. Keep fighting. I promise – I will be here fighting with you.
Happy Birthday. xo
I am a former teacher, turned SAHM. I have 3 children. The twins, Andrew and Addison, turned 3 years old in October. I also have a 1 year old baby who was born with a very rare chromosomal disorder - Wolf Hirschhorn Syndrome. The good, the bad, the ugly.. all here. Because this blog keeps me from drinking.
Happy Birthday, Alexander!!!!! Can’t wait to watch you continue to grow and develop in this coming year. We will be cheering you on right alongside your mommy.
Kim recently posted..It’s Good to Get Away
Thanks Kim! We are so glad to watch Leo grow up with Alexander. And congratulations on his big move today!!!
Happy Birthday to Matthew’s sweetest buddy! Hope ya’ll have a great time, Alexander!
Dea recently posted..Child with Autism Seeks Mom Who Isn’t Crazy…LOL
Thanks Dea – We were so blessed to meet you guys while in Ohio. Love to you and Matthew.
Happy Birthday sweet boy!! Well done in showing that you have come this far, keep fighting xx
Big hugs to you and your mommy and family xx
Thank you so much! We could not have come this far without everyone’s support. xo
Congratulations!! Happy Birthday Alexander! Wishing you all the best. xo
Angela recently posted..Mom, Forgotten
Thanks! Today, was a good day. It was a really good day.
Wishing a happy birthday to you all! It’s the best feeling to defy doctors expectations!
Bonnie recently posted..A Most Excellent Quote
Bonnie – your blog was one of the first ones I found. Thank you friend, for helping us push through these last few years. xo
Happy birthday! What a great celebration of life and love!
Laura recently posted..Doll diaper bag for children — Raspberry pink and green by laurascaramella
Girl – you have such a big heart. Being a sponsor. Twin mommy supporter. You are going to do amazing things with your business.But I LOVE.LOVE.LOVE. that you love my non – twin baby. because the twins brought us together, but this… this is amazing. xo
What a great celebration of life and love!!
Laura recently posted..Doll diaper bag for children — Raspberry pink and green by laurascaramella
Kristen,
How wonderful it is to see all these lovely pictures of everyone in celebration and to read your loving words of the sweet blessing that is Alexander.
Jen recently posted..it was good for me ~ how was it for you?
You are, as always, an inspiration to me. You are one of a handful of people who really understand what I meant in my darkest hours. And I love that you are here – on this day. Thank you. xo
What a beautiful letter to your son. Happy birthday, Alexander!
Jennifer recently posted..Wordful Wednesday-Can You Pop ‘Round for Some Tea, Telly and a Chat?
Thank you so much!!! It means so much to have all these birthday wishes!
Awww, this is such a sweet post filled with love and adoration!!
Happy 2nd birthday Alexander!!!
Helene recently posted..The Moment a Mother is Born
Girl… I must have spent 2 hours on your blog today. **random, I knwo*** and then – here you are – when it means the most. Love you girl. xo
Love it! It’s so great watching him grow (and the twins, too), what a beautiful family! I know what you mean about the statistics; it was one good thing about getting the boys’ diagnosis when Carson was four- we didn’t spend the first few years with that hanging over our heads. Welcome to the 2/3 club!
Teresa – you are an amazing mom and role model. Thanks for the welcome. Thanks for the congratulations. Thanks for understanding my fears. Thanks for being you. Because it makes me want to be a better me.
DAMN!!!!!!
Got me again
Gramps, you crack me up. Thanks. Because I know you mean that with love. xo
And there will be many more birthdays to come!!!
Life As Wife recently posted..He Just Saw Friend
I feel it. I just know it…. many many more to come. Thanks for that – that simple statement makes my heart smile.
So sweet. Happy, happy Birthday, Alexander. And here’s to many more.
Susi recently posted..The first hour
Thank you so much! We waited so long – and … thank you for helping to celebrate it with us. Seriously, my eyes are tearing up as I read through all these comments.
Beautiful post, sweetie. My eyes are filled with happy tears that this wonderful milestone is here. Here’s to many more birthday celebrations to come!!
Jenn [ Crippled Girl ] recently posted..Zebra Hat
Thanks Jenn….I knew you would understand that this milestone would seem like no big deal to some – but it really is a big deal to us. xo
Love Love Love this post. I, too, remember that day 2 years ago… I am so happy for all that Alexander has accomplished – and his superhero, wonder woman mom certainly plays a HUGE role in his success! Happy Birthday Alexander!
It is funny. Kimmie – you will forever be in my heart for those special hours we spent together. I wish I could explain how those memories calm my heart. There is no one I would rather share them with. Love you.
Okay, and now I am right back to tears…tears of joy though! So happy for Alexander and your family. He is an amazing boy with incredible courage and strength to keep fighting his way through everything thrown at him. Something special is going to come out of his life, I can feel it whenever I look into his eyes!
Kristen recently posted..Do You Believe in Fairies
Happy 2nd Birthday Alexander!! Birthdays are always milestones in themselves. The photos are a testament to the beautiful family that you are. Here’s to many many more birthdays to come. Much love xoxx
Happy Birthday!! No, you are not the only one who thinks like that. I find myself holding my breath until we have a second birthday party. I, like you, know that will not stop anything, but I still hold my breath.