Tonight I kissed you and wished you Happy “Almost Birthday.” Tomorrow you will wake up and be a different part of a statistic. Tomorrow you will join the 66 percent of children with Wolf Hirschhorn Syndrome who thrive beyond age 2.
I wonder if other mothers think like this? I wonder if I am the only one? Who has been holding my breath to pass this milestone?
I’m not in denial. I know that “turning 2” won’t suddenly stop the seizures, or doctor visits, or mean you are never sick. I know that a day doesn’t mean the end of our medically fragile world.
I also remember those first days in the hospital. I wonder if I will ever forget those cruel words from the doctors? They still cut so deep – they literally make me catch my breath and clutch my heart. I wonder how many times those words have fuelled us to push on to this point?
You are my fighter baby. So many times… you have fought like no one I’ve ever known. You make me proud to be your Mommy. And it was with pride that we celebrated the birthday you were never supposed to have – with our friends and family.
We forgot the tears of the past two years. We forgot the fears. The frustrations. The medicines. The everything. Instead…we had cake and ice cream and hamburgers and hotdogs and laughs. And we loved you. It wasn’t a “small wedding” like your first birthday. Grandparents, Uncles and Aunts, cousins, and a few friends. To fill our home with love.
Sweet Baby. My heart over flows with love for you. Every. Single. Day. Keep fighting. I promise – I will be here fighting with you.
Happy Birthday. xo