When Online wasn’t cool

Now, everyone is online. (Everyone but Ray… an whole other post). My husband’s grandpa is on Facebook.  People use twitter, Facebook, find blogs… connect.  I have these great bloggy “friends” that I share my heart and soul with every few days.  But, if they walked past me on the street – I might not recognize them.  This is the world we live in.

 

Four years ago, it was not like this.  It seems like we have lived in this “internet friendship” world forever, but I know that is not the case.  Because – I remember explaining my internet friendships – when it wasn’t cool.

 

4 years ago (almost to the day now) – I found our I was pregnant.  And… shortly after – with twins. Although I was excited, I was SO scared.  There was no twitter that I could just put in “twins” and find people.  I didn’t read blogs. I used Facebook, but only with people I knew in real life.  I had NO online friends.  None of my friend had online friends.  No one I really knew had online friends.  It wasn’t really cool.

 

**Disclaimer – If you’ve had online friends for 5 years or more – no offense intended.**- I’m talking late 2007 / early 2008.  And we live in the sticks… so it takes people longer to accept things where we live.  I just remember trying to explain to people how I was sharing my secrets with “friends” I never met…

 

I remember coming home and doing a Google search for twins.  I came up with a lot of Baseball stuff.  I searched Twin Support…. and I found this amazing site.  Twins Magazine – I thank you. For introducing me to some of my best “forever” friends.

 

I “met” these girls.  All pregnant with twins – just like me.  I remember the day I lost my ankles.  My knee just suddenly became attached to my foot with a tree trunk.  I came home – logged onto the message board, and discovered my “friend” Joanna had lost hers too.  So had Marsi, and all of the others. Whew… I was not alone!!!  I remember when I had to wear my bedroom slippers to school because I could not get a pair of shoes on my feet and one of my besties in real life talked about how she wore high heels through her entire pregnancy.  I logged onto the message board and realized that we all had outgrown our shoes. Whew! I was not alone!!!  We celebrated the births of our children together.  We struggled through the first few months together.  We bonded. We shared.  They know more about my family than some of my family members.  They were my rock.

 

I remember trying to explain this group of sisters to my In Real Life family and friends.  They all looked at me like I’d drooped off the deep end.  Now, life is different.  People accept that you can form friendships with others online.  You can make friends and share the secrets of your heart – but at that time I was considered a bit freakish among my friends.

 

Thank you Twins Magazine.  I don’t know how I would have survived without those girls.  I have met some of them…slowly, but surely.  One lives only an hour away – and she is amazing.  She stayed with me on Mother’s day when I had Alexander. (What mother leaves their own children to come be with a friend?? A true friend.) One set up our entire conference to Utah after we found out about Alexander’s diagnosis.  One offered her home and transportation for me to attend my first Blogger conference.  Again… these are significant events in my life.  My twin Moms have been a part of each of them.

 

Today was no exception.  One of my twin sisters of the heart drove down here to meet up tonight. I can’t even describe what it is like to finally meet someone who knows all your secrets but has never seen your face.  I think it was probably weird for her husband, because I could have probably told him his life story.  And she could have talked to Ray about basically anything in the last 4 years of our lives.  It was magical.  Thank you internet.  Thank you world for catching up.  For realizing that friendships can transcend physical proximity.  That friendships can be more than physical time spent together. For giving me my twin mom anchors.  When I am lost – they always tend to ground me. 

 

I had Online Friends – When Online Friends Weren’t Cool.  Here are some pictures of our families meeting the first time:

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Her son is so cute – he should be on a Juice Commercial.  He reminds me of the kid on Jerry McGuire

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No lie… Addison has a new best friend. They were inseparable.  They even said, “I love you” to each other. Of course – Alexander loved it all…

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Did I mention there was a train that drove around the mall? Extreme coolness..

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Time for the Family Photos:

 

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Good… this is the best one.

 

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We are losing them. Notice Marsi is parenting while I continue to smile at the camera.. Yeah- parent of the year Smile

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And gone! Some are picking things. Some are running off. Some are just plain miserable. Again – I’m oblivious.

 

I am still cautious. Some online personality could really be a 60 year old man with bad intentions. But, I am so thankful that I have allowed the possibility to exist – that the internet was meant to bring people together. Because… the internet has brought me so many amazing relationships. Thank you.

 

Once again… Shell – I love to Pour My Heart Out.

 

 

What TWINS Do: In Pictures

We are traveling today, so I decided it was the perfect time to link up to Memories Captured.

 

The theme is month is a “letter” of sorts.. to describe how life is right now.

 

If you have twins, you will completely get this series of photos.  If you have 2 or more children, this probably applies to you to.  It is an unusual phenomenon.

 

I walk in the room to this… My heart Melts….

 

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And … 3 seconds later – we have this.

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Dear Twins.  You are causing me to grow old. Quickly.  And I love you. Because… that is what children are to do.

This post is the equivalent of a “Real World” Episode

Who ever invented the term “terrible twos?”

They are the Terrific Twos. … The real terror starts at age 3.

I beg them. I remind them. I time-out them. I take things away. I do every single positive / negative reinforcement / punishment known to man.  They still don’t listen.

They climb on everything. They talk back. They refuse to eat. (Unless it is a cupcake.)

They steal toys. They hit each other. They try to throw chairs in anger? (Seriously… where did they learn this stuff?)

Tonight, I was speaking to a friend. I asked her, “Have you ever talked to someone and walked away thinking – ‘they must be on drugs?’ … This is exactly what it is like to have a conversation with toddlers.”

Later, we decorated the Christmas Tree.  I had to give the twins a broken strand of lights to choke each other with play with.

They dug out everything break-able and said, “Should I drop this?” as I shouted, “NO!” every 3 seconds.
If an ornament had a movable part – they tried to move it.  If it didn’t have a movable part before… It probably does now.

I give that tree until approximately 7pm tomorrow night. Then I say that tree is on a pile on top of two silly children.

And yet…. they are so cute.

And these pictures are completely true.  And they are also part of our night.  They are also part of life with twin 3 year-olds.  In reality TV… photos and video clips are compiled to show people in a certain “light.”

Tonight… my kids were angels.  Just look…..

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This right here is the “Twin Money Shot.” You never seem to be able to get them to hug.  (or even look at the camera at the same time.) Super proud of this picture!

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Oh yes… and that is totally a small cheese “knife” in Addison’s hand on the big photo.  It was the only way I could get them to let me photograph them…. to let her hold a knife. *sigh* Mother of the year award… again.

Over Indulging our kids… and Undermining my Husband

I’ve been undermining Ray.  Not on purpose, but… *sigh* the truth is – he’s been over indulgent to the kids.  This past summer it seems every time I turned around – he was doing / getting them something.  You want an example? check out the post HERE.  Or… even this weekend – he left to get chemicals for the pool and came home with:
A tool belt
Musical Violin
Musical Saxophone
Small Piano
Battle Ship
Dinosaurs
And a couple of other things….

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And they have a Birthday coming up in one month.  * I hang my head in shame here .*  I’ve been undermining this birthday.  I’ve felt ashamed that we were “going all out” for their 3 year old party.  I’ve felt like we should be doing something a little more … low key … for a birthday.

Ray’s booked a “destination” party.  We’re all going to a farm.  At the farm, there is a corn maze, hay ride, and petting zoo.  We’re doing a whole farm theme, complete with farm themed invitations.  We have farm themed games, farm themed food, and farm themed activities back at our house after the party.  We are inviting our friends and there should be a nice group of kids to enjoy the twins birthday. Instead of jumping up and down with excitement, even though the party sounds amazing, I have been quietly undermining Ray’s efforts because I felt it was a little lavish.  I’ve felt I needed to explain that this was Ray’s thing.
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And now I feel ashamed.  Last Tuesday helped me to put things in perspective, once again. 

What if you were dating someone or even friends with someone who said, “I’ll come get you for dinner,” and never showed up?  How many times would you allow that behavior happen before you just… ditched that person? They say Actions speak louder than Words.  Sometimes I hate what our actions say.  They say… “We are not reliable.  We tell you we will be there for you, but we don’t always show up.” 

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I know everyone reading this blog is thinking, it isn’t our fault.  But 3 year olds don’t understand that.  They wouldn’t speak to us when they returned home from the babysitter’s.  We don’t want to make a big deal about Alexander needing us, because the last thing we want is for them to resent him.  So they resent us… And if Raymond wants to throw them a grand birthday party to speak loudly YOU ARE SPECIAL TOO… then, a grand birthday party it shall be.

Which brings me right back to Raymond’s gift giving.  I hear people comment on the amount of toys my children have.  First, they don’t have that many…. but secondly – Imagine if almost weekly your sibling got new and cool toy?  Therapists leave Alexander toys all the time in the hopes that it will be the thing that triggers a new skill.  How long until do you think it will be until the twins resent all those “gifts?”
*I actually came home to another “gift” for Alexander.  It is a water therapy pool to help with his mobility.  Let me tell you – the twins think it looks awesome*

So again … I feel ashamed.  If Ray wants to go “picking” (this is what he calls himself when he stops at a yard sale) toys for the twins… then why can’t he?  Why should anyone care what my children have anyway?  Why should I feel the need to explain to others (or apologize) because my children got something?

I’m hoping the overindulgence will come to a slow simmer.  But, I’m P8190605also going to stop feeling guilty because we chose to show our love many ways.  I tell my kids I love them about a million times a day.  I tuck my kids into bed every night.  I hug them… over and over again.  But, I also break promises and disappear for days unexpectedly.  I will no longer undermine my husband as he plans an amazing birthday party.  Instead – I will focus on what a blessing it is to be married to a man who takes the time to think about our kid’s needs.

Saving My Sanity.

I’m having a lot of trouble over here.  Let’s start with Social Media:  What am I supposed to put where? I mean really.  How can I maintain a LIFE … IN REAL LIFE … and somehow grow this blog?  When do I take a pause from social media to actually LIVE? 

I’m exhausted. Today, Ray took the twins outside to “mow the yard.”  I was supposed to take a nap. Instead?  I checked blogs, replied to posts people made to my blog, checked my Facebook status updates, analyzed my stats, checked in with my Mom’s of Twins group (who I am seriously neglecting), checked in with my Parent’s of Wolf Hirschhorn Syndrome group (a lot of things happening that I would like to support), and now I learn that I should be posting things to TWITTER?

It is going to send me over the edge.  I mean… What am I supposed to put on Twitter?  Something witty or funny? I do that on Facebook.  Updates on my day? Who the heck cares? Something in Caps? Something with an @ symbol or a #?  I DON’T EVEN KNOW WHAT THESE SYMBOLS MEAN!

All the while, I’m trying to DO things with my kids, take photos to document the sweet things they do, and … LIVE.

I’m ready for some help over here.  I’m chasing 2 kids around… trying to get someone to poop on a potty. Shoot… at this point, a random stranger could come over, poop on my potty, and I would be thrilled.  And Alexander is doing awesome.  I want to video tape him EVERY MINUTE.  Because, one of these minutes, he’s going to go out, start the car, and drive to a place less crazy.  (Ok. .. he might not be doing quite that well, but you get the picture.)

Anyway – here’s a few pictures from the past few days.  I’ll post more later. Maybe in a year or so … when we are all pooping on the potty and I figure out Twitter.

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Playing with the same tractor my dad restored for us.  I LOVE IT.
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A bad idea and a worse idea… Addison on a horse with multiple moving parts.. and – seriously, can’t you just see the big problem with Andrew’s big idea? (A better mom would have run OVER instead of for the CAMERA).

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Look how big Alexander is sitting.  He’s rocking EVERYTHING lately.  He’s also In LOVE. (Not me – my skinny friend.)  And… what else? Working with my dad.  So sad that our Tuesday dates are over. (um… because I have to return to work, for those of you not following along.)
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Alexander – exhausted from therapy.  Sitting, reaching for toys, holding his head up… Did I mention that he’s awesome?  And… Addison. I love that she still fits the “wrong way” on the couch.  They are really turning into children now – how long until these days are over?
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I took this photo last night. It is a little fuzzy because I snuck into their room, blindly aimed, and flash photo’d them before I ran out.  (I was petrified I was going to wake them up!) But… this photo could be the picture to my heart right now.  A slumber party… It just makes me … HAPPY.

Guess I am still sane. But, if you are looking for a part time job as a personal assistant to a non-famous person who can’t pay you ANYTHING… I know someone who is hiring Smile

Wordless Thursday? Take your Kids to work~

Today was Take your Kid to Work day… and who would have thought it would be so much fun!  I was a little leery because they are only 2 1/2… – but I decided we would go for one “teaching” period and then my planning period.  Also – their amazing babysitter/my awesome cousin came in during my planning period to help me with them.  Did I mention It was so much FUN?! 

So here is our day in a nutshell.  We started last night with the packing of book bags and the laying out of clothes.  Then this morning we loaded up the car, ate breakfast together, and packed a snack … to make it out the door at the last possible second.  Once at school – we took a tour of most of the building.  The kids got braver, wanted to hold my hand less and less, and tried to run more and more.  They are complete charmers and even made some of the “grumpier” people smile.  While I taught my class, they colored and were their hysterical selves.  The real treat was our trip to the small animal class to see Miss J.M. and pet the rabbits.  Definitely the HIT of the day.  And, that was it… 3 hours of twinadoe fun.  I need a nap!

So here are some pictures from our day at work with Mommy.
 Our day started out ok.  Standing on the chair that rolls…..
 Emptying the box of 48 crayons + emptying the box of 48 crayons = a lot of crayons.
 Andrew sitting at Mommy’s desk working on his computer.
 Is it bad parenting if I let my kids use the stapler as a phone?
 Or let my son use the big paper clip as a brush?
 Um… no one did staple their ear to their head, just so you know.
 Again – they look Innocent.  It is creative lighting.
 I do love this girl. She tore apart every single paper clip in my room.
Addison and her newest BFF – J.M.
 Andrew and I checking out the Guinea Pigs.
 Surprise! Turtles are in that aquarium!
 Addison and I – making our way to the main attraction…
 ~The Bunny~
 My kids don’t take no for an answer… they will chase an animal to the ends of the Earth.
Awesome day. Love take your kid to work day!

Journal before the life lessons

I have a series of life lessons that came from Yesterday.  First, I’m going to write a journal entry of the events of yesterday and tomorrow I can post some of those life lessons.Yesterday was a day to remember. Or forget, whichever you prefer.

Let’s start at the beginning….  I’ve been struggling.  Struggling with the blog. Is it for me? Is it too depressing? Is it real? Do I really want to be someone who has a bunch of people read my words? If so… do I need to “watch” what I say? *sigh*  I’ve been having a bit of writer’s block because I’m not sure how the blog is coming off. Or maybe it is because I’ve become to aware of how many people are reading it since people have started to hear about Alexander’s need for a seizure dog.  Either way – I have really been struggling with what to say here.

So, then yesterday smacked me right in the face.  Actually – the weekend smacked me in the face.  Here is a rundown.

Alexander’s seizure medicine is in the process of being tweaked.  He has been having these small, barely noticeable seizures.  Ray and I have watched and waited… to see if the medicine would take hold and put these seizures to rest.  The medicine is not the right combination.  This past weekend Alexander had a bunch of mini seizures.  It was becoming an issue that needed to be taken care of.

Yesterday began the chain of phone calls.  I called to discuss with the neurologist what changes to make in his medicine.  I also called the pediatrician about his formula, made arrangements to have his formula picked up, called our lawyer to finalize some legal documents, called the medical supply company to order our supplies, called the pharmacy (who knows us by name…), and made arrangements for the twins to get picked up because I had to rush home after work for Alexander’s PT.  I’m not saying all of this because I want sympathy.  Actually – sympathy is pretty far from what I want from anyone.  Sympathy almost rhymes with PITY and as much as I appreciate people praying for our family, at the same time it makes me sad that we need those prayers.  Yesterday was one of those days when I seriously didn’t know how I was doing it.  Some days are good. Some days are bad.

Some days you have to ask your father to stay over because your youngest son is having another uncontrollable seizure and you have to call 911 again, and he rides in a helicopter again (only this time I couldn’t go with him.), and we go to Hershey again

Yesterday I worked to not scare my children when the ambulance came.  I needed to explain why Alexander and I were leaving but they were not allowed to go in their most awesome vehicles.  You know what I told my kids last night as I kissed them goodbye? “Mommy has to go and tell Fireman Sam what to do.  She has a big important job to be the boss of Fireman Sam and I can’t wait to tell you all about it when I get home.”  It sufficed, but this morning Andrew asked me, “Mommy? Can you take care of me? Where am I going today?”

Yesterday was a day of lessons.  Yesterday, I was worried about something so insignificant as a little piece of cyber writing.  Yesterday, I realized that many people worry or become angry over insignificant things.  Yesterday, I just as quickly realized the power of words – to hurt and to encourage.  Yesterday I learned that I’m not a fan of helicopters that don’t let the mother of a little boy ride along.  Yesterday, I was not a fan of seizures.  Yesterday, I thought I just might break. 
Finally, yesterday has past.  Tomorrow I will take Alexander to do a 24-hour seizure watch.  An EEG, video recorder, my baby, and myself will hang out to see what happens.  Tomorrow, I’m going to pray for a seizure so we can get some real information about what is going on with my baby. 
And finally, tonight I just kissed my sweet babe goodnight.
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